Back to All Events

National Cornelia de Lange Syndrome Awareness Day

Social: #CdLSawarnessday2021 #CdLSstrong #raredisease #cdlsawareness

Twitter: @CdLSFoundation

Facebook: @CdLSFoundation

Website: https://www.cdlsusa.org/raise-awareness/

National CdLS Awareness Day is observed on the second Saturday of May each year in order to shed light on this often misdiagnosed, little-known genetic syndrome.  Each year, parents, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness fliers in public places; make presentations to civic groups or health workers; write to their local newspapers; and much more.  

The CdLS Foundation encourages a variety of awareness raising activities throughout the month of May in honor of National CdLS Awareness Day.

Earlier Event: May 6
National Nurses Week
Later Event: May 9
Food Allergy Awareness Week